Merge pull request #55 from uk-tre/Davsarper-patch-1

Update june agenda and files

docs/events/wg_workshops/2024-06-05-june-meeting/discussion-data-access-pysyft.md

@@ -0,0 +1,17 @@
+# Facilitating researcher access to data with PySyft
+
+**Leads**: Dave Buckley (OpenMined)
+
+## Proposal
+
+### Summary
+
+[OpenMined](https://openmined.org/) will present their [PySyft notebook](https://github.com/OpenMined/PySyft) which allows to "Perform data science on data that remains in someone else's server"
+
+### Preparation
+
+No required preparation beyond an open mind!
+
+### Target audience
+
+No specific target audience in mind - anybody interested!

docs/events/wg_workshops/2024-06-05-june-meeting/discussion-information-governance.md

@@ -0,0 +1,41 @@
+# Do we need an IG working group?
+
+Breakout discussion
+
+**Leads**: Amy Tilbrook (UoE)
+
+## Proposal
+
+Breakout discussions are open talks around a topic. They are open ended, and while we hope actions and collaboration arise from them, there is no specific output expected by the end of the session.
+
+### Prompts
+
+- Is there a perception of lack of IG knowledge in UK TRE community ("an IG black hole"?)
+- What support would benefit the community?
+
+A) Specific IG working group? Thoughts on:
+
+- remit/purpose
+- membership
+- how it would work
+
+B) Is IG an element in ALL working groups? (as per previous group days: "working groups need a purpose, as creating and maintaining one takes effort, many people are interested in everything/all groups"). How could this be supported?
+
+C) Something else?
+
+- Previous suggestions for remit of an IG working group:
+- "Something around Information Governance and policies" e.g. ISO27001 and also local e.g. University policies
+- Advice from contributors for specific issues -
+- Aligning strategies for dealing with TRE-specific IG challenges - e.g. AI/ML, commercial access, international access
+
+### Summary
+
+Open discussion on the need of an Information Governance working group, its potential remit and possible members.
+
+### Preparation
+
+No required preparation beyond an open mind!
+
+### Target audience
+
+No specific target audience in mind - anybody interested!

docs/events/wg_workshops/2024-06-05-june-meeting/discussion-what-words-to-use.md

@@ -0,0 +1,19 @@
+# New research: language to use when explaining SDEs and TREs to the public
+
+**Leads**: Emma Morgan (Understanding Patient Data)
+
+## Proposal
+
+### Summary
+
+[Understanding Patient Data](https://understandingpatientdata.org.uk/)(UPD) has recently published their [final report](https://understandingpatientdata.org.uk/what-words-use) on the What Words To Use project with Research Works, which focused on exploring the best language to use when explaining Secure Data Environments and Trusted Research Environments to the public.
+
+During the event UPD will make a 20 minutes presentation on the project and its results, followed by an open discussion with the community.
+
+### Preparation
+
+No required preparation beyond an open mind!
+
+### Target audience
+
+No specific target audience in mind - anybody interested!

docs/events/wg_workshops/2024-06-05-june-meeting/discussion-working-groups.md

@@ -0,0 +1,19 @@
+# Working groups discussion and work session
+
+**Leads**: Working groups leads
+
+## Proposal
+
+### Summary
+
+For the second breakout session (16:00-16:45) existing Working Groups will host breaout rooms on their progress.
+
+It will be a session to get community feedback, enquiries from new interested members and work or discuss any relevant topics or actions.
+
+### Preparation
+
+No required preparation beyond an open mind!
+
+### Target audience
+
+No specific target audience in mind - anybody interested!

docs/events/wg_workshops/2024-06-05-june-meeting/index.md

@@ -1,16 +1,78 @@
 # UK TRE Community meeting - June 2024
 
-:Date: [Wednesday 5th June 2024](https://arewemeetingyet.com/London/2024-06-05/13:30/UK%20TRE%20Community%20meeting)
-:Time: 13:30 - 17:00 (to be confirmed)
+:Date: [Wednesday 5th June 2024 13:30-17:00](https://arewemeetingyet.com/London/2024-06-05/13:30/UK%20TRE%20Community%20meeting)
+
 :Registration: https://lu.ma/trntu1di
 :Location: Online
+:Slides:
+:Recording:
+
+```{toctree}
+:maxdepth: 1
+:hidden: true
+
+workshop-data-processing-tools
+discussion-information-governance
+discussion-what-words-to-use
+workshop-researcher-registry
+discussion-data-access-pysyft
+discussion-working-groups
+```
 
 ## Background
 
+​The UK TRE Community is a community of over 200 people that has grown organically over the last year for anyone interested in TREs, including researchers, operators, information governors, managers and more, from all sectors and disciplines.
+
+​The core aims of fostering collaboration and sharing of innovative ideas to support the delivery of groundbreaking research with sensitive data have resonated across the UK and beyond.
+
+​The community has a website, an active mailing list and Slack channel, and runs quarterly events like this for the community to come together, discuss ideas and problems within the TRE space and work collaboratively together on possible solutions and ways forward!
+
 ## Agenda
 
+| Time          | Agenda Item                                                   |
+| ------------- | ------------------------------------------------------------- |
+| 13:30 - 13:45 | Welcome and intro                                             |
+| 13:45 - 14:15 | [Crick's TRE: history and approach](#keynote)                 |
+| 14:15 - 14:45 | [Community updates](#community-updates)                       |
+| 14:45 - 14:55 | Break                                                         |
+| 14:55 - 15:00 | Intro to breakout session 1                                   |
+| 15:00 - 15:45 | Breakout session 1 [(see below)](#session-1)                  |
+| 15:45 - 15:55 | Break                                                         |
+| 15:55 - 16:00 | Intro to breakout session 2                                   |
+| 16:00 - 16:45 | Breakout session 2 - Working groups [(see below)](#session-2) |
+| 16:45 - 17:00 | Wrap up                                                       |
+
 ### Keynote
 
+A talk by Pete Barnsley about the Crick's Institute TRE, its current approach and the history of how it came to be.
+
 ### Community updates
 
+_A chance for anyone in the community to share quick updates with everyone on the call._
+
+The Community Management Working Group will share progress and general updates and next steps.
+Working groups leads will then update the community on their progress and present their charters
+
+This update will mark the start of the official community review period, after which working groups will be formally approved.
+
 ### Breakout sessions
+
+Breakout rooms were a mixture of workshops (more structured sessions designed around a particular problem area, focused on moving towards an output) and discussions (less structured sessions to explore general areas of interest within the UK TRE space), as well as open rooms to have general discussions.
+
+There will be two sessions on the day of 45 minutes each.
+
+#### Session 1
+
+- [](./workshop-data-processing-tools.md) - workshop
+- [](./discussion-information-governance.md) - discussion
+- [](./discussion-what-words-to-use.md) - discussion
+- [](./workshop-researcher-registry.md) - workshop
+- [](./discussion-data-access-pysyft.md) - discussion
+
+#### Session 2
+
+For the second breakout session (16:00-16:45) existing Working Groups will host breaout rooms on their progress.
+
+It will be a session to get community feedback, enquiries from new interested members and work or discuss any relevant topics or actions.
+
+- [](./discussion-working-groups.md) - discussion

docs/events/wg_workshops/2024-06-05-june-meeting/workshop-data-processing-tools.md

@@ -0,0 +1,26 @@
+# Data processing tools
+
+Workshop
+
+**Leads**: James Friel (University of Dundee), Aida Sanchez (UCL)
+
+## Proposal
+
+### Prompts
+
+- Risk appetite to deposit data in a TRE - What level on de-identification is comfortable for use within a TRE? e.g truncation, pseudo-anonymization
+- What do current data processing pipelines look like? And are their pain points in the process?
+- What De-identification tools are being used? What has worked? What hasn't?
+
+### Summary
+
+Intro discussion around data processing, de-identification , and cohort building.
+
+### Preparation
+
+A general understanding of data anonymisation.
+The ICO anonymisation guidance & the ADF (anonymisation decision making framework) may be of interest as a grounding in this.
+
+### Target audience
+
+People who work in data de-identification and data providers for TRES

docs/events/wg_workshops/2024-06-05-june-meeting/workshop-researcher-registry.md

@@ -0,0 +1,22 @@
+# Researcher Registry Project
+
+**Leads**: Emily Jefferson (HDR UK)
+
+## Proposal
+
+### Summary
+
+Researcher Registry Project
+
+HDR is developing a UK-wide standard for a "Safe Person" and also a technical solution to support TREs to be able to see information on Researchers and their organisations to help them make decisions on whether or not a Researcher is "safe".
+The registry would also keep a record of which projects researchers have been approved to work on across TREs.
+
+HDR UK would like input into the current design from the community to ensure that it meets needs.
+
+### Preparation
+
+No required preparation beyond an open mind!
+
+### Target audience
+
+No specific target audience in mind - anybody interested!