From 1b58cefff88c1e5caed802b517272f854353757f Mon Sep 17 00:00:00 2001 From: Niclas Jareborg Date: Thu, 25 Apr 2019 09:28:06 +0200 Subject: [PATCH 1/2] Add callout about human data and security This is in response to https://github.com/datacarpentry/cloud-genomics/issues/73 Added a general paragraph about human data and the need to be aware of any ethical and legal requirements when working with human genomic data. --- _episodes/04-which-cloud.md | 15 +++++++++++++++ 1 file changed, 15 insertions(+) diff --git a/_episodes/04-which-cloud.md b/_episodes/04-which-cloud.md index 42b2ddd1..53269919 100644 --- a/_episodes/04-which-cloud.md +++ b/_episodes/04-which-cloud.md @@ -181,6 +181,21 @@ my university HPCC for running the full dataset. > - How many times will you need to run this pipeline? {: .challenge} +> ## Human genomic data & Security +> +> Note that if you are working with human genomics data there might be ethical and legal +> considerations that affects your choice of cloud resources to use. The terms of use, and/or +> the legislation under which you are handling the genomic data, might impose heightened information +> security measures for the computing environment in which you intend to process it. This is a too broad +> topic to discuss in detail here, but in general terms you should think through the technical and +> procedural measures needed to ensure that the confidentiality and integrity of the human data you work +> with is not breached. If there are laws that govern these issues in the jurisdiction in which you work, +> be sure that the cloud service provider you use can certify that they support the necessary measures. +> Also note that there might exist restrictions of use of cloud service providers that operate in other +> jurisdictions than your own, either by how the data was consented by the research subjects or by the +> jurisdiction under which you operate. Do consult the legal office of your institution for guidance +> when processing human genomic data. +{: .callout} ### Other Resources: From a359f54ed277868327eee8b9a57d706efedbc45b Mon Sep 17 00:00:00 2001 From: Niclas Jareborg Date: Thu, 2 May 2019 07:55:06 +0200 Subject: [PATCH 2/2] Minor grammar fixes --- _episodes/04-which-cloud.md | 4 ++-- 1 file changed, 2 insertions(+), 2 deletions(-) diff --git a/_episodes/04-which-cloud.md b/_episodes/04-which-cloud.md index 53269919..52d403ce 100644 --- a/_episodes/04-which-cloud.md +++ b/_episodes/04-which-cloud.md @@ -184,14 +184,14 @@ my university HPCC for running the full dataset. > ## Human genomic data & Security > > Note that if you are working with human genomics data there might be ethical and legal -> considerations that affects your choice of cloud resources to use. The terms of use, and/or +> considerations that affect your choice of cloud resources to use. The terms of use, and/or > the legislation under which you are handling the genomic data, might impose heightened information > security measures for the computing environment in which you intend to process it. This is a too broad > topic to discuss in detail here, but in general terms you should think through the technical and > procedural measures needed to ensure that the confidentiality and integrity of the human data you work > with is not breached. If there are laws that govern these issues in the jurisdiction in which you work, > be sure that the cloud service provider you use can certify that they support the necessary measures. -> Also note that there might exist restrictions of use of cloud service providers that operate in other +> Also note that there might exist restrictions for use of cloud service providers that operate in other > jurisdictions than your own, either by how the data was consented by the research subjects or by the > jurisdiction under which you operate. Do consult the legal office of your institution for guidance > when processing human genomic data.