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agenda | 2023-04-13 #8

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lillylaplace opened this issue Apr 13, 2023 · 0 comments
Open

agenda | 2023-04-13 #8

lillylaplace opened this issue Apr 13, 2023 · 0 comments

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@lillylaplace
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lillylaplace commented Apr 13, 2023

IRBs:

  • Pilot amendment approved!
  • Main current amendment (pending approval): parent self-reports, Lilly+Luc, prioritizing 11-13 age range, adding DERSP/FPEP/TEXIP, added child volunteers
  • Main next amendment: adding RCADS/DSMXC

Follow-ups from meeting with CAPP:

  • Outcome of GB/JP testing of Zoom Telehealth and Calendly?
  • Need to develop consent script with CAPP?
  • THRIVE added to CCF Recruitment System in REDCap?
  • Schedule training session with assessors to connect them to Calendly

Zoom:

  • NDCLab team should have access to ndclaba and ndclabc
  • Do we want AG/KH to set up Telehealth account in case they need to run consent? --> get OS & AG set up
  • LL: where do requests go? fee info? how to follow-up? admin to approve connection to Calendly?

Questionnaires:

  • RCADS and DSMXC are done, going in to next amendment (main study) (awaiting GB/JP decision on whether we will include parent reports) --> need to add RCADS parent (en and esla), replacing CDI2 c&p
  • VIA, MASI, and PDS(P) have been revised and uploaded (can be included in pilot)
  • DEMO_D being updated to DEMO_E by LL with field embeddings (no content change) for deploy with main study --> LL/JA look at selfnowA for adding embeddings
  • AG updated REDCap and survey queue? Date? 4/11 for all except PDS on 4/12
  • rainy day project: update surveys to have instructions inside surveys
  • CBCL awaiting scoring from JP --> hold off on this for now
  • LSAS: still need clinician REDCap? Any other questionnaires need a clinician version inside REDCap? --> AG to check on this with Yasmin
  • Final checks for scoring of all THRIVE instruments still to come – LL project, bring in RAs
  • Reminder from JA about plan for identityA questionnaire: FAQ to the protocol for “What is your current gender identity” question; provide "non-binary" and its definition, as one example, if children ask about what "Another gender" means:

A non-binary person is someone who does not identify as exclusively a boy or a girl. Someone who is non-binary might feel like a mix of genders, or like they have no gender at all.

Consent:

  • Need to confirm plan for witness signature --> AG to test
  • Confirm system in place to give copy of consent to both parent and child (required) --> send both to parent email, mention that child is included; note added to consent protocol

Flanker:

  • KH: readme update and merge? --> KH to complete today

Orders:

  • Were grey magnetic cases dropped off to Tasha for return?
  • Carts need to be picked up from mailroom
  • Amazon order placed (splitter cable, surge protector, iPad organizer & 2 cases), delivery anticipated Friday (but might not be available for pickup until Monday)
  • Poster design needed before A-frame signs can be ordered
  • Possible lanyard sources identified
  • Possible swag ideas & sources identified

NDAR:

  • GB/LL/DH (w/JA assist) to begin building scripts for NDAR uploads

Protocols:

  • EEG – AG updates? --> almost done
  • Clinical --> AG/GB working on it

Piloting:

  • Candidate(s) identified for pilot testing in next 2 weeks?
  • AG to get access to THRIVE email and Google Voice today
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